{"id":1443,"date":"2019-06-19T10:59:31","date_gmt":"2019-06-19T08:59:31","guid":{"rendered":"https:\/\/leonandfriends.org\/?page_id=1443"},"modified":"2019-06-20T19:06:06","modified_gmt":"2019-06-20T17:06:07","slug":"english","status":"publish","type":"page","link":"https:\/\/leonandfriends.org\/en\/english\/","title":{"rendered":"English"},"content":{"rendered":"<div data-elementor-type=\"wp-post\" data-elementor-id=\"1443\" class=\"elementor elementor-1443\" data-elementor-settings=\"[]\">\n\t\t\t\t\t\t<div class=\"elementor-inner\">\n\t\t\t\t\t\t\t<div class=\"elementor-section-wrap\">\n\t\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-8db6ba2 elementor-section-height-min-height elementor-section-boxed elementor-section-height-default elementor-section-items-middle elementor-invisible\" data-id=\"8db6ba2\" data-element_type=\"section\" 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class=\"elementor-shape elementor-shape-bottom\" data-negative=\"true\">\n\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewbox=\"0 0 1000 100\" preserveaspectratio=\"none\">\n\t<path class=\"elementor-shape-fill\" d=\"M790.5,93.1c-59.3-5.3-116.8-18-192.6-50c-29.6-12.7-76.9-31-100.5-35.9c-23.6-4.9-52.6-7.8-75.5-5.3\tc-10.2,1.1-22.6,1.4-50.1,7.4c-27.2,6.3-58.2,16.6-79.4,24.7c-41.3,15.9-94.9,21.9-134,22.6C72,58.2,0,25.8,0,25.8V100h1000V65.3\tc0,0-51.5,19.4-106.2,25.7C839.5,97,814.1,95.2,790.5,93.1z\"\/>\n<\/svg>\t\t<\/div>\n\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t\t\t<div class=\"elementor-row\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-4837060 elementor-invisible\" data-id=\"4837060\" data-element_type=\"column\" 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https:\/\/leonandfriends.org\/wp-content\/uploads\/2019\/06\/arrow-intro-260x63.png 260w, https:\/\/leonandfriends.org\/wp-content\/uploads\/2019\/06\/arrow-intro-50x12.png 50w, https:\/\/leonandfriends.org\/wp-content\/uploads\/2019\/06\/arrow-intro-150x36.png 150w\" sizes=\"100vw\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-67096ba elementor-absolute elementor-invisible elementor-widget elementor-widget-heading\" data-id=\"67096ba\" data-element_type=\"widget\" data-settings=\"{&quot;motion_fx_motion_fx_mouse&quot;:&quot;yes&quot;,&quot;motion_fx_mouseTrack_effect&quot;:&quot;yes&quot;,&quot;motion_fx_mouseTrack_speed&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:0.1000000000000000055511151231257827021181583404541015625,&quot;sizes&quot;:[]},&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:250,&quot;_position&quot;:&quot;absolute&quot;}\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">ENGLISH VERSION (Not 100% finished)<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-869be0a elementor-invisible elementor-widget elementor-widget-heading\" data-id=\"869be0a\" data-element_type=\"widget\" data-settings=\"{&quot;motion_fx_motion_fx_mouse&quot;:&quot;yes&quot;,&quot;motion_fx_mouseTrack_effect&quot;:&quot;yes&quot;,&quot;motion_fx_mouseTrack_speed&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:0.1000000000000000055511151231257827021181583404541015625,&quot;sizes&quot;:[]},&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_delay&quot;:300}\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Hello,<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fb5fc98 elementor-invisible elementor-widget elementor-widget-heading\" data-id=\"fb5fc98\" data-element_type=\"widget\" data-settings=\"{&quot;motion_fx_motion_fx_mouse&quot;:&quot;yes&quot;,&quot;motion_fx_mouseTrack_effect&quot;:&quot;yes&quot;,&quot;motion_fx_mouseTrack_speed&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:0.1000000000000000055511151231257827021181583404541015625,&quot;sizes&quot;:[]},&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_delay&quot;:400}\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">I am LEON<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1788021 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"1788021\" data-element_type=\"widget\" data-settings=\"{&quot;motion_fx_motion_fx_mouse&quot;:&quot;yes&quot;,&quot;motion_fx_mouseTrack_effect&quot;:&quot;yes&quot;,&quot;motion_fx_mouseTrack_speed&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:0.1000000000000000055511151231257827021181583404541015625,&quot;sizes&quot;:[]},&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_delay&quot;:500}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-text-editor elementor-clearfix\">\n\t\t\t\t<p>In June 2018 I was diagnosed with the extremely rare <strong>Syngap Syndrome<\/strong>, which is considered uncurable. Now my parents want to make the impossible possible by finding successful treatments to give me a chance for a normal life. <strong>But we need your help for this!<\/strong><\/p>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a4ed33c elementor-invisible elementor-widget elementor-widget-button\" data-id=\"a4ed33c\" data-element_type=\"widget\" data-settings=\"{&quot;motion_fx_motion_fx_mouse&quot;:&quot;yes&quot;,&quot;motion_fx_mouseTrack_effect&quot;:&quot;yes&quot;,&quot;motion_fx_mouseTrack_speed&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:0.1000000000000000055511151231257827021181583404541015625,&quot;sizes&quot;:[]},&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_delay&quot;:600}\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t<a href=\"#scroll-down\" class=\"elementor-button-link elementor-button elementor-size-sm\" role=\"button\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon elementor-align-icon-right\">\n\t\t\t\t\t\t\t\t\t<i class=\"fa fa-arrow-down\" aria-hidden=\"true\"><\/i>\n\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t<span class=\"elementor-button-text\">Learn More<\/span>\n\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-cf0c4c9 content-wrap elementor-section-full_width elementor-section-height-min-height elementor-section-items-top elementor-section-height-default elementor-invisible\" data-id=\"cf0c4c9\" data-element_type=\"section\" id=\"scroll-down-content\" 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data-id=\"54c92fd\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-column-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-37a522c elementor-widget elementor-widget-text-editor\" data-id=\"37a522c\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-text-editor elementor-clearfix\">\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-0c1f290 content-wrap elementor-section-boxed elementor-section-height-default elementor-section-height-default elementor-invisible\" data-id=\"0c1f290\" data-element_type=\"section\" data-settings=\"{&quot;background_motion_fx_translateY_effect&quot;:&quot;yes&quot;,&quot;background_motion_fx_translateY_speed&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:6.5,&quot;sizes&quot;:[]},&quot;animation&quot;:&quot;fadeInUp&quot;,&quot;animation_delay&quot;:150,&quot;background_motion_fx_translateY_affectedRange&quot;:{&quot;unit&quot;:&quot;%&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:{&quot;start&quot;:0,&quot;end&quot;:100}},&quot;background_motion_fx_devices&quot;:[&quot;desktop&quot;,&quot;tablet&quot;,&quot;mobile&quot;]}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t\t\t<div class=\"elementor-row\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-da6721c\" data-id=\"da6721c\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-column-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-b373a90 elementor-absolute elementor-invisible elementor-widget elementor-widget-heading\" data-id=\"b373a90\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:250,&quot;_position&quot;:&quot;absolute&quot;}\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">ENGLISH VERSION (Not 100% finished)<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-044481a elementor-widget elementor-widget-heading\" data-id=\"044481a\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Hello,<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9633032 elementor-widget elementor-widget-heading\" data-id=\"9633032\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">I am Leon<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-71582af elementor-widget elementor-widget-text-editor\" data-id=\"71582af\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-text-editor elementor-clearfix\">\n\t\t\t\t<p>In June 2018 I was diagnosed with the extremely rare <strong>Syngap Syndrome<\/strong>, which is considered uncurable. Now my parents want to make the impossible possible by finding successful treatments to give me a chance for a normal life. <strong>But we need your help for this!<\/strong><\/p>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-86ae9b3 content-wrap elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"86ae9b3\" data-element_type=\"section\" id=\"scroll-down\" data-settings=\"{&quot;background_motion_fx_translateY_effect&quot;:&quot;yes&quot;,&quot;background_motion_fx_translateY_speed&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:6.5,&quot;sizes&quot;:[]},&quot;background_motion_fx_translateY_affectedRange&quot;:{&quot;unit&quot;:&quot;%&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:{&quot;start&quot;:0,&quot;end&quot;:100}},&quot;background_motion_fx_devices&quot;:[&quot;desktop&quot;,&quot;tablet&quot;,&quot;mobile&quot;]}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t\t\t<div class=\"elementor-row\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-ffce3fd\" data-id=\"ffce3fd\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-column-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-96c297d elementor-invisible elementor-widget elementor-widget-heading\" data-id=\"96c297d\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_delay&quot;:150}\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Dear friends, family, colleagues and kind-hearted people!<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7c57a62 elementor-invisible elementor-widget elementor-widget-text-editor\" data-id=\"7c57a62\" data-element_type=\"widget\" data-settings=\"{&quot;_animation_delay&quot;:150,&quot;_animation&quot;:&quot;fadeInUp&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-text-editor elementor-clearfix\">\n\t\t\t\t<p>Welcome to our fundraising research project Leon &amp; Friends! On behalf of Leon, we dream of accomplishing the impossible: to find a cure for a currently incurable genetic disorder! The Department of Child and Adolescent Pediatrics of the AKH in Vienna would launch the research project with us. Therefore we are hoping to raise an enormous sum, an amount we could never fund ourselves.<\/p><p><strong>We thank you for your support!\u2028<\/strong> <br \/>Sandra, Florian, Leon and Marie<\/p>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-4cc3f4e content-wrap elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"4cc3f4e\" data-element_type=\"section\" data-settings=\"{&quot;background_motion_fx_translateY_effect&quot;:&quot;yes&quot;,&quot;background_motion_fx_translateY_speed&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:6.5,&quot;sizes&quot;:[]},&quot;background_motion_fx_translateY_affectedRange&quot;:{&quot;unit&quot;:&quot;%&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:{&quot;start&quot;:0,&quot;end&quot;:100}},&quot;background_motion_fx_devices&quot;:[&quot;desktop&quot;,&quot;tablet&quot;,&quot;mobile&quot;]}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t\t\t<div class=\"elementor-row\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-c557264\" data-id=\"c557264\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-column-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5d7558b9 elementor-tabs-view-horizontal elementor-widget elementor-widget-tabs\" data-id=\"5d7558b9\" data-element_type=\"widget\" data-widget_type=\"tabs.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-tabs\">\n\t\t\t<div class=\"elementor-tabs-wrapper\" role=\"tablist\" >\n\t\t\t\t\t\t\t\t\t<div id=\"elementor-tab-title-1561\" class=\"elementor-tab-title elementor-tab-desktop-title\" aria-selected=\"true\" data-tab=\"1\" role=\"tab\" tabindex=\"0\" aria-controls=\"elementor-tab-content-1561\" aria-expanded=\"false\"><a href=\"\">Donation Form<\/a><\/div>\n\t\t\t\t\t\t\t\t\t<div id=\"elementor-tab-title-1562\" class=\"elementor-tab-title elementor-tab-desktop-title\" aria-selected=\"false\" data-tab=\"2\" role=\"tab\" tabindex=\"-1\" aria-controls=\"elementor-tab-content-1562\" aria-expanded=\"false\"><a href=\"\">Bank Transfer<\/a><\/div>\n\t\t\t\t\t\t\t\t\t<div id=\"elementor-tab-title-1563\" class=\"elementor-tab-title elementor-tab-desktop-title\" aria-selected=\"false\" data-tab=\"3\" role=\"tab\" tabindex=\"-1\" aria-controls=\"elementor-tab-content-1563\" aria-expanded=\"false\"><a href=\"\">Donate via Paypal<\/a><\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t<div class=\"elementor-tabs-content-wrapper\" role=\"tablist\" aria-orientation=\"vertical\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-tab-title elementor-tab-mobile-title\" aria-selected=\"true\" data-tab=\"1\" role=\"tab\" tabindex=\"0\" aria-controls=\"elementor-tab-content-1561\" aria-expanded=\"false\">Donation Form<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-1561\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"1\" role=\"tabpanel\" aria-labelledby=\"elementor-tab-title-1561\" tabindex=\"0\" hidden=\"false\"><p>With this form you can conveniently make one-off or recurring donations via <span style=\"text-decoration: underline;\">credit card<\/span> or <span style=\"text-decoration: underline;\">Paypal<\/span>.<\/p><p><script src=\"https:\/\/donorbox.org\/widget.js\" paypalexpress=\"true\"><\/script><iframe loading=\"lazy\" style=\"max-width: 500px; min-width: 310px; max-height: none!important;\" src=\"https:\/\/donorbox.org\/embed\/leonandfriends\" name=\"donorbox\" width=\"100%\" height=\"615px\" frameborder=\"0\" scrolling=\"no\" seamless=\"seamless\"><\/iframe><\/p><\/div>\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-tab-title elementor-tab-mobile-title\" aria-selected=\"false\" data-tab=\"2\" role=\"tab\" tabindex=\"-1\" aria-controls=\"elementor-tab-content-1562\" aria-expanded=\"false\">Bank Transfer<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-1562\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"2\" role=\"tabpanel\" aria-labelledby=\"elementor-tab-title-1562\" tabindex=\"0\" hidden=\"hidden\"><p><strong>Our donation account for bank transfers<\/strong><\/p><p>LEON AND FRIENDS e.V.<br \/>Bank: Sparkasse Salzburg<br \/>IBAN: AT55 2040 4015 0015 0045<br \/>BIC: SBGSAT2SXXX<\/p><\/div>\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-tab-title elementor-tab-mobile-title\" aria-selected=\"false\" data-tab=\"3\" role=\"tab\" tabindex=\"-1\" aria-controls=\"elementor-tab-content-1563\" aria-expanded=\"false\">Donate via Paypal<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-1563\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"3\" role=\"tabpanel\" aria-labelledby=\"elementor-tab-title-1563\" tabindex=\"0\" hidden=\"hidden\"><p>Donate directly via PayPal. You can also set up recurring donations.<\/p><form action=\"https:\/\/www.paypal.com\/cgi-bin\/webscr\" method=\"post\" target=\"_top\" data-trp-original-action=\"https:\/\/www.paypal.com\/cgi-bin\/webscr\"><input name=\"cmd\" type=\"hidden\" value=\"_s-xclick\" \/><br \/><input name=\"hosted_button_id\" type=\"hidden\" value=\"SG6X98NZXBBWW\" \/><br \/><input alt=\"Jetzt einfach, schnell und sicher online bezahlen \u2013 mit PayPal.\" name=\"submit\" src=\"https:\/\/www.paypalobjects.com\/de_DE\/AT\/i\/btn\/btn_donateCC_LG.gif\" type=\"image\" \/><br \/><img loading=\"lazy\" src=\"https:\/\/www.paypalobjects.com\/de_DE\/i\/scr\/pixel.gif\" alt=\"\" width=\"1\" height=\"1\" border=\"0\" \/><input type=\"hidden\" name=\"trp-form-language\" value=\"en\"\/><\/form><\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-ba9fc15 content-wrap elementor-section-height-min-height elementor-section-boxed elementor-section-height-default elementor-section-items-middle elementor-invisible\" data-id=\"ba9fc15\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;motion_fx_motion_fx_scrolling&quot;:&quot;yes&quot;,&quot;animation&quot;:&quot;fadeIn&quot;,&quot;animation_delay&quot;:100,&quot;motion_fx_devices&quot;:[&quot;desktop&quot;,&quot;tablet&quot;,&quot;mobile&quot;]}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t\t\t<div class=\"elementor-row\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-50b42c6d elementor-invisible\" data-id=\"50b42c6d\" data-element_type=\"column\" data-settings=\"{&quot;animation_delay&quot;:150,&quot;animation&quot;:&quot;fadeIn&quot;}\">\n\t\t\t<div class=\"elementor-column-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3a9e00ba elementor-invisible elementor-widget elementor-widget-heading\" data-id=\"3a9e00ba\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_delay&quot;:150}\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Leon & Friends \u2013 In a Nutshell<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6fdfa6a9 elementor-invisible elementor-widget elementor-widget-image\" data-id=\"6fdfa6a9\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_delay&quot;:250}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-image\">\n\t\t\t\t\t\t\t\t\t\t\t\t<img width=\"1549\" height=\"680\" src=\"https:\/\/leonandfriends.org\/wp-content\/uploads\/2019\/06\/leon-banner-abenteuer.png\" class=\"attachment-full size-full\" alt=\"\" loading=\"lazy\" srcset=\"https:\/\/leonandfriends.org\/wp-content\/uploads\/2019\/06\/leon-banner-abenteuer.png 1549w, https:\/\/leonandfriends.org\/wp-content\/uploads\/2019\/06\/leon-banner-abenteuer-300x132.png 300w, https:\/\/leonandfriends.org\/wp-content\/uploads\/2019\/06\/leon-banner-abenteuer-768x337.png 768w, https:\/\/leonandfriends.org\/wp-content\/uploads\/2019\/06\/leon-banner-abenteuer-1024x450.png 1024w\" sizes=\"100vw\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-4a395a78 elementor-section-boxed elementor-section-height-default elementor-section-height-default elementor-invisible\" data-id=\"4a395a78\" data-element_type=\"section\" data-settings=\"{&quot;animation&quot;:&quot;fadeInUp&quot;,&quot;animation_delay&quot;:350}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t\t\t<div class=\"elementor-row\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-47233e58\" data-id=\"47233e58\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-column-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5330ae94 elementor-widget elementor-widget-heading\" data-id=\"5330ae94\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">What is it all about?<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3265a010 elementor-widget elementor-widget-text-editor\" data-id=\"3265a010\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-text-editor elementor-clearfix\">\n\t\t\t\t<p>Our project is a matter truly dear to our hearts because our little sweetheart Leon, who is turning two years of age in the coming days, is affected by a rare genetic disorder. He is the youngest known case worldwide. The medical society estimates the number of cases at around 300 worldwide. The actual figures are suspected to be much higher. Leon has been diagnosed with the Syngap Syndrome.<\/p><p>Why might the actual number be so much bigger? The genetic testing to diagnose this disorder is still very new within the medical society. It is actually so new that even most doctors have never heard about these diagnostic methods. Using this method, the whole genetics of the patient are being decoded and compared with the genetics of a healthy individual. The genetic decoding is extremely work intensive and we had to wait four months to receive the results.<\/p>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-b7788e5 elementor-hidden-phone elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b7788e5\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t\t\t<div class=\"elementor-row\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-120ba339 elementor-invisible\" data-id=\"120ba339\" data-element_type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;fadeInUp&quot;,&quot;animation_delay&quot;:150}\">\n\t\t\t<div class=\"elementor-column-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7afda9fb elementor-aspect-ratio-169 elementor-invisible elementor-widget elementor-widget-video\" data-id=\"7afda9fb\" data-element_type=\"widget\" data-settings=\"{&quot;video_type&quot;:&quot;hosted&quot;,&quot;autoplay&quot;:&quot;yes&quot;,&quot;mute&quot;:&quot;yes&quot;,&quot;loop&quot;:&quot;yes&quot;,&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_delay&quot;:250,&quot;aspect_ratio&quot;:&quot;169&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"e-hosted-video elementor-wrapper elementor-fit-aspect-ratio elementor-open-inline\">\n\t\t\t\t\t<video class=\"elementor-video\" src=\"https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/08\/geburt.mp4\" autoplay=\"\" loop=\"\" muted=\"muted\" controlslist=\"nodownload\"><\/video>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-69d00184 elementor-invisible\" data-id=\"69d00184\" data-element_type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;fadeInUp&quot;,&quot;animation_delay&quot;:250}\">\n\t\t\t<div class=\"elementor-column-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-479cf001 elementor-aspect-ratio-169 elementor-invisible elementor-widget elementor-widget-video\" data-id=\"479cf001\" data-element_type=\"widget\" data-settings=\"{&quot;video_type&quot;:&quot;hosted&quot;,&quot;autoplay&quot;:&quot;yes&quot;,&quot;mute&quot;:&quot;yes&quot;,&quot;loop&quot;:&quot;yes&quot;,&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_delay&quot;:250,&quot;aspect_ratio&quot;:&quot;169&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"e-hosted-video elementor-wrapper elementor-fit-aspect-ratio elementor-open-inline\">\n\t\t\t\t\t<video class=\"elementor-video\" src=\"https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/08\/leon1.mp4\" autoplay=\"\" loop=\"\" muted=\"muted\" controlslist=\"nodownload\"><\/video>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-371b1855 elementor-section-boxed elementor-section-height-default elementor-section-height-default elementor-invisible\" data-id=\"371b1855\" data-element_type=\"section\" data-settings=\"{&quot;animation&quot;:&quot;fadeInUp&quot;,&quot;animation_delay&quot;:150}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t\t\t<div class=\"elementor-row\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-38ef2edc\" data-id=\"38ef2edc\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-column-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-4fdffd24 elementor-widget elementor-widget-heading\" data-id=\"4fdffd24\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">The symptoms of the disorder<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1205bf33 elementor-widget elementor-widget-text-editor\" data-id=\"1205bf33\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-text-editor elementor-clearfix\">\n\t\t\t\t<p>Severe mental impairment, epilepsy, autism, severe sleep impairment, muscular hypertonia (limb muscles) resulting in motoric problems, impaired speech development, impaired digestion and eating, learning disabilities. Perhaps you know of somebody whose children show similar symptoms but were never able to be diagnosed. In either case, we want to pass along helpful advice.<\/p><p>Many things lend support. Positive thoughts and prayers. Donations or supportive social networks. Spread the word, tell your friends and acquaintances about it, post it like a champion. Every little effort helps us to raise the awareness about this disorder.<\/p><p>Maybe you know self-employed entrepreneurs who are willing to donate material goods which we would raffle off to those who so kindly volunteer in support of our effort. With monetary donations, every euro counts. Something big will grow out of all these many small things.<\/p>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-53621b5c elementor-hidden-phone elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"53621b5c\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t\t\t<div class=\"elementor-row\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-17fad0d5 elementor-invisible\" data-id=\"17fad0d5\" data-element_type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;fadeInUp&quot;,&quot;animation_delay&quot;:150}\">\n\t\t\t<div class=\"elementor-column-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-f4607a9 elementor-aspect-ratio-169 elementor-invisible elementor-widget elementor-widget-video\" data-id=\"f4607a9\" data-element_type=\"widget\" data-settings=\"{&quot;video_type&quot;:&quot;hosted&quot;,&quot;autoplay&quot;:&quot;yes&quot;,&quot;mute&quot;:&quot;yes&quot;,&quot;loop&quot;:&quot;yes&quot;,&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_delay&quot;:250,&quot;aspect_ratio&quot;:&quot;169&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"e-hosted-video elementor-wrapper elementor-fit-aspect-ratio elementor-open-inline\">\n\t\t\t\t\t<video class=\"elementor-video\" src=\"https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/08\/leon2.mp4\" autoplay=\"\" loop=\"\" muted=\"muted\" controlslist=\"nodownload\"><\/video>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-22028a36 elementor-invisible\" data-id=\"22028a36\" data-element_type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;fadeInUp&quot;,&quot;animation_delay&quot;:250}\">\n\t\t\t<div class=\"elementor-column-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-782e0310 elementor-aspect-ratio-169 elementor-invisible elementor-widget elementor-widget-video\" data-id=\"782e0310\" data-element_type=\"widget\" data-settings=\"{&quot;video_type&quot;:&quot;hosted&quot;,&quot;autoplay&quot;:&quot;yes&quot;,&quot;mute&quot;:&quot;yes&quot;,&quot;loop&quot;:&quot;yes&quot;,&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_delay&quot;:250,&quot;aspect_ratio&quot;:&quot;169&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"e-hosted-video elementor-wrapper elementor-fit-aspect-ratio elementor-open-inline\">\n\t\t\t\t\t<video class=\"elementor-video\" src=\"https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/08\/leon3.mp4\" autoplay=\"\" loop=\"\" muted=\"muted\" controlslist=\"nodownload\"><\/video>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-3e614af9 elementor-section-boxed elementor-section-height-default elementor-section-height-default elementor-invisible\" data-id=\"3e614af9\" data-element_type=\"section\" data-settings=\"{&quot;animation&quot;:&quot;fadeInUp&quot;,&quot;animation_delay&quot;:150}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t\t\t<div class=\"elementor-row\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-432c2084\" data-id=\"432c2084\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-column-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-42c9a39d elementor-widget elementor-widget-heading\" data-id=\"42c9a39d\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Our little sunshine<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5cb42c54 elementor-widget elementor-widget-text-editor\" data-id=\"5cb42c54\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-text-editor elementor-clearfix\">\n\t\t\t\t<p>The news about the pregnancy was for both of us as unexpected as it was thrilling at the same time. Sandra and I (Florian) had been dearly wishing for a baby but then Leon\u2019s grandmother was diagnosed with cancer. Chemotherapy commenced and our desire for a baby became a distant thought. It was a tremendously difficult time for us all. She is a fantastic human being who has always helped everyone around her and always put herself second. The whole family mobilised all energy to make her feel as comfortable as possible.<\/p><p>Sandra was having abdominal cramps all weekend long so that we decided to drive to the hospital on a Sunday evening. The doctor asked if we had performed a pregnancy test already. The question threw us off for a moment. No, we didn\u2019t do one yet. The ultrasound revealed a little dot. Sandra was calling into the adjacent room where I was told to wait: \u201cHoney, I am pregnant!\u201d. Within seconds I had a lump in my throat and tears of happiness in my eyes. The doctor dampened the euphoria immediately. The bubble burst within seconds. \u201cA lot of things are indicating an approaching miscarriage. That happens during this early stage of pregnancy rather often.\u201d<\/p><p>The subsequent weeks were filled with frequent visits to the hospital for ultrasound and hormone check-ups. The doctors didn\u2019t give us much hope during these visits. Somewhere down the line it became clearer. The pregnancy continued to be anything but simple but the little dot would get a chance to become Leon.<\/p>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-1edc1031 elementor-hidden-phone elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"1edc1031\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t\t\t<div class=\"elementor-row\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-7bd8b0d7 elementor-invisible\" data-id=\"7bd8b0d7\" data-element_type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;fadeInUp&quot;,&quot;animation_delay&quot;:150}\">\n\t\t\t<div class=\"elementor-column-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-36859c89 elementor-aspect-ratio-169 elementor-invisible elementor-widget elementor-widget-video\" data-id=\"36859c89\" data-element_type=\"widget\" data-settings=\"{&quot;video_type&quot;:&quot;hosted&quot;,&quot;autoplay&quot;:&quot;yes&quot;,&quot;mute&quot;:&quot;yes&quot;,&quot;loop&quot;:&quot;yes&quot;,&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_delay&quot;:250,&quot;aspect_ratio&quot;:&quot;169&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"e-hosted-video elementor-wrapper elementor-fit-aspect-ratio elementor-open-inline\">\n\t\t\t\t\t<video class=\"elementor-video\" src=\"https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/08\/krank.mp4\" autoplay=\"\" loop=\"\" muted=\"muted\" controlslist=\"nodownload\"><\/video>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-902f509 elementor-invisible\" data-id=\"902f509\" data-element_type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;fadeInUp&quot;,&quot;animation_delay&quot;:250}\">\n\t\t\t<div class=\"elementor-column-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6af58e9a elementor-aspect-ratio-169 elementor-invisible elementor-widget elementor-widget-video\" data-id=\"6af58e9a\" data-element_type=\"widget\" data-settings=\"{&quot;video_type&quot;:&quot;hosted&quot;,&quot;autoplay&quot;:&quot;yes&quot;,&quot;mute&quot;:&quot;yes&quot;,&quot;loop&quot;:&quot;yes&quot;,&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_delay&quot;:250,&quot;aspect_ratio&quot;:&quot;169&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"e-hosted-video elementor-wrapper elementor-fit-aspect-ratio elementor-open-inline\">\n\t\t\t\t\t<video class=\"elementor-video\" src=\"https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/08\/krank2.mp4\" autoplay=\"\" loop=\"\" muted=\"muted\" controlslist=\"nodownload\"><\/video>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-4b3e32e5 elementor-section-boxed elementor-section-height-default elementor-section-height-default elementor-invisible\" data-id=\"4b3e32e5\" data-element_type=\"section\" data-settings=\"{&quot;animation&quot;:&quot;fadeInUp&quot;,&quot;animation_delay&quot;:150}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t\t\t<div class=\"elementor-row\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-1a4bc2ab\" data-id=\"1a4bc2ab\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-column-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3788b1f1 elementor-widget elementor-widget-heading\" data-id=\"3788b1f1\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Leon\u2019s birth<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7a28534f elementor-widget elementor-widget-text-editor\" data-id=\"7a28534f\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-text-editor elementor-clearfix\">\n\t\t\t\t<p>The whole family was filled with joy due to the birth of our first child. But after about six months the first dark clouds began to appear. It felt like Leon didn\u2019t develop on par with all the children around him. Sandra had a very early intuition about it, supported by her knowledge as a physiotherapist.<\/p><p>An odyssey of check-up began. Countless blood tests, ultrasound examinations, stool samples, urine tests, metabolic analyses, EEG (brain currents), all the way to a general anaesthetic for a full brain MRI. Always leading to the same answer: \u201cWe do not know what the problem is.\u201d In the meantime, we tried to support and encourage Leon as much as possible. We felt so bad for him, as he was exposed to a variety of different therapy approaches each week. On top of that, there were continued visits to the hospital. Leon began to understand and started crying every time he saw a white coat. But we had to continue. Undressing, weighting, measuring, blood sampling, motoric testing and so on.<\/p><p>Leon often cried so bitterly during these exams with his little hands longingly stretched toward us, as if he wanted to say: &#8222;Please, help me!&#8220; &#8211; with big tears streaming down his face. In these moments the overpowering feeling of not being able to help him brought us to our own limits. Leon was only 17 months old and had already endured so much. Right from the beginning he was a very happy baby, but the situation was very difficult for him. He smiled less and less and began to get defensive even when we only wanted to undress him for a diaper change. We made a decision to try one more visit to the hospital.<\/p><p>We didn\u2019t want to be turned away until we had a diagnosis. To remain unrelenting was the motto. We often had to witness a not so kid-friendly approach, lack of empathy and cold statements. Certainly not from everyone, but sadly from a majority of doctors that we encountered. Luckily, we also met kind-hearted and dedicated one along the way.<\/p>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-d9142bd elementor-section-boxed elementor-section-height-default elementor-section-height-default elementor-invisible\" data-id=\"d9142bd\" data-element_type=\"section\" data-settings=\"{&quot;animation&quot;:&quot;fadeInUp&quot;,&quot;animation_delay&quot;:150}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t\t\t<div class=\"elementor-row\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-41a9b23\" data-id=\"41a9b23\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-column-wrap elementor-element-populated\">\n\t\t\t\t\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-8ea3102 elementor-widget elementor-widget-heading\" data-id=\"8ea3102\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">The diagnosis<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-204f53d elementor-widget elementor-widget-text-editor\" data-id=\"204f53d\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-text-editor elementor-clearfix\">\n\t\t\t\t<p>Due to the severe developmental delays, the day-to-day routine is a big challenge. Leon requires a lot of attention and supervision. His meals always have to be thoroughly blended since he has a hard time chewing and is at risk of choking. We already had two near-death experiences due to choking. He sometimes wakes up 20 times a night, has strong mood swings and difficulties controlling his emotions. Leon receives constant care and daily therapy. Everyone in the family is working with him and supports his training. Leon does have a special aura; everyone who meets him wants to hug him right away. In spite of all the hardships and worries he is the best boy in the world to us.<\/p><p>The final diagnosis felt like a rug pulled from under our feet. Total emptiness. Since then, constant worries about his future are our daily companions. We simply cannot imagine that we are powerless and there is nothing we can do for him. Everyone always wants the best for their kids. That so many things should be denied to him is something we don&#8217;t want to accept. We try to mobilise all our energy to find help him.<\/p><p>We do get a glimpse of the future from other affected families. Their children are all significantly older than Leon and the challenges increase with their age.<\/p>\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b5bb4e3 elementor-hidden-desktop elementor-hidden-tablet elementor-widget elementor-widget-image\" data-id=\"b5bb4e3\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t<div class=\"elementor-image\">\n\t\t\t\t\t\t\t\t\t\t\t\t<img width=\"525\" height=\"525\" src=\"https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/07\/leon-video-1024x1024.jpg\" class=\"attachment-large size-large\" alt=\"\" loading=\"lazy\" srcset=\"https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/07\/leon-video-1024x1024.jpg 1024w, https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/07\/leon-video-150x150.jpg 150w, https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/07\/leon-video-300x300.jpg 300w, https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/07\/leon-video-768x768.jpg 768w, https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/07\/leon-video-146x146.jpg 146w, https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/07\/leon-video-50x50.jpg 50w, https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/07\/leon-video-75x75.jpg 75w, https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/07\/leon-video-85x85.jpg 85w, https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/07\/leon-video-80x80.jpg 80w, https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/07\/leon-video.jpg 1423w\" sizes=\"100vw\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6a7e3df elementor-hidden-phone elementor-aspect-ratio-169 elementor-invisible elementor-widget elementor-widget-video\" data-id=\"6a7e3df\" data-element_type=\"widget\" data-settings=\"{&quot;video_type&quot;:&quot;hosted&quot;,&quot;autoplay&quot;:&quot;yes&quot;,&quot;mute&quot;:&quot;yes&quot;,&quot;loop&quot;:&quot;yes&quot;,&quot;_animation&quot;:&quot;fadeInUp&quot;,&quot;_animation_delay&quot;:150,&quot;aspect_ratio&quot;:&quot;169&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"e-hosted-video elementor-wrapper elementor-fit-aspect-ratio elementor-open-inline\">\n\t\t\t\t\t<video class=\"elementor-video\" src=\"https:\/\/leonandfriends.org\/wp-content\/uploads\/2018\/08\/leon4.mp4\" autoplay=\"\" loop=\"\" muted=\"muted\" controlslist=\"nodownload\"><\/video>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>ENGLISH VERSION (Not 100% finished) Hello, I am LEON In June 2018 I was diagnosed with the extremely rare Syngap Syndrome, which is considered uncurable. Now my parents want to make the impossible possible by finding successful treatments to give me a chance for a normal life. But we need your help for this! Learn &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/leonandfriends.org\/en\/english\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8222;English&#8220;<\/span><\/a><\/p>","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"spay_email":""},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v17.2 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>English - Leon &amp; Friends e.V.<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/leonandfriends.org\/en\/english\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"English - Leon &amp; Friends e.V.\" \/>\n<meta property=\"og:description\" content=\"ENGLISH VERSION (Not 100% finished) Hello, I am LEON In June 2018 I was diagnosed with the extremely rare Syngap Syndrome, which is considered uncurable. Now my parents want to make the impossible possible by finding successful treatments to give me a chance for a normal life. But we need your help for this! 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